リンク
学会
患者会
その他
海外サイト
MPS
ゴーシェ病
ファブリー病
ポンペ病
LSD全体
- National Organization for Rare Disorders
- The Online Metabolic and Molecular Bases of Inherited Disease
- NIH Office of Rare Diseases
- Society of Inherited Metabolic Disorders
- Society for The Study of Inborn Error Metabolism
- The Children`s Medical Research Foundation
- Climb National Information Center for Metabolic Diseases